Entries by pcl_admin

First CCI newsletter of 2018

Childhood Cancer International have published their first newsletter of 2018, and it’s packed with great stories from around the world! PanCareLIFE is one of the stories featured – we’re delighted to work with CCI and to have a survivor representative join our meetings.  

Related Publication: Audiological monitoring in Swiss childhood cancer patients

PanCareLIFE partners at UNIBE have published the results of their work on ‘Audiological monitoring in Swiss childhood cancer patients’ in Pediatric Blood & Cancer (A. Weiss et al. 2017;e26877, https://doi.org/10.1002/pbc.26877). Abstract Background: Full audiological monitoring is the best strategy to detect hearing loss early and to provide timely intervention in the absence of a clinical method of […]

Fertility preservation press conference, Berlin

PanCareLIFE’s Anja Borgmann-Staudt from Charité – Universitätsmedizin Berlin participated in a press conference in Berlin about patient education regarding fertility and about payment for fertility preservation measures. Currently, insurers provide full coverage in Finland, France, Italy, Poland and Turkey, but not Germany.    

9th PanCareLIFE General Assembly Meeting

Members of the PanCareLIFE consortium met in Mainz, Germany for the 9th PanCareLIFE General Assembly Meeting, 08 – 09 November 2017. Now that the data has been cleaned and harmonised at the Data Centre in Mainz, our focus has moved to the planned analyses for fertility, ototoxicity and quality of life that we’ll undertake in the coming year. We also […]

PanCare Videos

PanCare is a multidisciplinary pan‐European network of professionals, survivors and their families that aims to reduce the frequency, severity and impact of late side‐effects of the treatment of children and adolescents with cancer. Survivors play a very important role in the network, so the PanCare team has prepared a video explaining the importance of listening to survivors. […]

Autumn Newsletters from St. Jude’s

The latest newsletters from the Childhood Cancer Survivor Study and Long-Term Follow-Up Study are now available. Learn more about the Advancing Survivors’ Knowledge (ASK) About Skin Cancer Study, meeting survivors’ health-related needs, the next wave of the Long-Term Follow-up Study and more!                      

20th PanCare Meeting

The 20th PanCare meeting was held 3 – 5 Oct 2017 in Luebeck, Germany, hosted by PanCareLIFE WP5 leader Thorsten Langer. The meeting covered a range of topics, including guidelines and practical consequences for endocrine long-term late effects, survivorship and long-term follow-up guidelines after stem cell transplantation. There were also updates from the PanCare EU projects, PanCareLIFE and […]

Workshop on Long-Term Care After Childhood Cancer

The first Workshop on Long-Term Care after Childhood Cancer in Germany was held in Bonn 27 – 28 September 2017, hosted by the German Childhood Cancer Foundation and PanCareLIFE researchers Dr. Gabriele Calaminus and Prof. Dr. Thorsten Langer, who also represent the German Pediatric Oncology and Hematology (GPOH) Society working group on long-term surveillance. In […]

Children and Cancer: An Atlantic Forum

PanCareLIFE Research Manager Dr. Julianne Byrne (Boyne Research Institute) attended the Children & Cancer Forum last week in Washington, DC. The conference featured presentations and discussions by clinicians, researchers, parents and survivors, on topics ranging from immunotherapy to big data to survivors’ stories to underwriting.  The conference was sponsored by the AFLAC insurance company and was […]