Project News and Updates.

Latest Newsletter from LTFU Study

The Long Term Follow Up (LTFU) Study is the world’s longest running study of survivors of childhood cancer. In their latest newsletter, you can read about their recent work, including the EMPOWER study to promote breast cancer screening in women who survived childhood cancer.


19th PanCare Meeting

The 19th PanCare meeting was held 3 – 5 May 2017 in Lund, hosted by PanCareSurFup Coordinator Lars Hjorth. The meeting covered a range of topics, including psychosocial and socioeconomic issues after childhood cancer, developing recommendations for transitions and updates from the PanCare EU projects PanCareLIFE and PanCareSurFup. Peter Kaatsch (UMC-Mainz) and Julianne Byrne (BOYNE) gave an overview of PanCareLIFE, with updates on data checking, harmonisation and collection from Desiree Grabow (UMC-Mainz), Katerina Kepakova (UHB) and Tomas Kepak (UHB). PanCareLIFE work on fertility guidelines was also presented by Leontien Kremer (AMC).

Attendees of the 19th PanCare Meeting, Lund


Latest Newsletter from CCSS

The latest newsletter from the Childhood Cancer Survivor Study in the US is now available!

New Publication from University of Bern

PanCareLIFE researchers at the University of Bern have just published a new paper ‘Validation of questionnaire-reported hearing with medical records: A report from the Swiss Childhood Cancer Survivor Study’, funded in part by PanCareLIFE. You can read the full, open access article here.

Mar 2017 PanCareLIFE newsletter now available!

Our second newsletter is now available here.

International Childhood Cancer Awareness Day 2017

SIOP Europe are hosting ‘Development of paediatric cancer medicines – Milestones and the Road Ahead Towards More Life-Saving Innovation’ for International Childhood Cancer Awareness Day 2017. The event is being held Tuesday 7 March 2017 in Brussels. Belgium.

49th SIOP-CCI Congress

You can submit abstracts now for the 49th Congress of the International Society of Paediatric Oncology, to be held 12 – 15 Oct 2017 in Washington, DC. The deadline is 28 March 2017.

The SIPO congress coincides with the annual Childhood Cancer International (CCI) Congress.


International Childhood Cancer Day 2017

February 14 is International Childhood Cancer Day, which highlights the need for concerted global actions to address the growing challenge posed by this non-communicable disease.

The ICCD campaign’s ultimate goal and unified message is “Better access to Care for Children & Adolescents with Cancer Everywhere”. The 1800 healthcare professionals from 110 countries who are members of the International Society of Paediatric Oncology (SIOP) and the 187 member organizations of Childhood Cancer International (CCI), the largest non-profit patient support organization for childhood cancer ask everyone to come together in solidarity to make sure children and adolescents everywhere have the chance to survive cancer and live long, productive and meaningful lives.

‘World first’ – baby born from ovary frozen in childhood

We’re delighted to hear that a patient from our UK data provider Dr. Alison Leiper of the Great Ormond Street Hospital in London, has given birth after surgeons implanted ovary tissue taken when she was a child.


Moaza Al Matrooshi gave birth to a healthy boy after her fertility was restored using frozen tissue CREDIT: FERGUS WALSH/BBC

The 24-year-old is thought to be the first in the world to have a baby after having an ovary frozen before the onset of puberty.

Moaza Al Matrooshi, who gave birth in London, said the arrival of her baby son was “like a miracle”.

The UK breakthrough will give hope to thousands of other girls who are unable to conceive because their reproductive organs have been damaged by treatment for cancer and other diseases.

14 Dec 2016, The Telegraph, UK


Dr. Alison Leiper, Great Ormond Street Hospital