Project News and Updates.

15th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer

The 15th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer will be held June 15 – June 17, 2017 in Atlanta, Georgia.

Mark your calendar!

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DNA Quality Control Checks

Researchers at Erasmus Medical Centre have completed quality control checks for DNA from saliva and serum samples for our genetic analyses. The results look good!

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Related Publication from Denmark

Our Danish colleagues from KB are co-authors on the publication ‘Gastrointestinal and liver disease in Adult Life After Childhood Cancer in Scandinavia: A population-based cohort study’ in the International Journal of Cancer.

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PanCareLIFE presentation at SPOG

Annette Weiss (UNIBE) gave a presentation at the Swiss Peadiatric Oncology Group (SPOG) Symposium on the 3rd of June 2016 in Bern. Her presentation was entitled ‘Auditory complications after childhood cancer in Switzerland.’

She won third place in the ‘SPOG lecture prize award’ – congratulations Annette!

PanCareLIFE Publication on Fertility Preservation Guidelines

Our publication ‘Fertility preservation in children, adolescents, and young adults with cancer: Quality of clinical practice guidelines and variations in recommendations’ has been published in Cancer (2016 Jul 15;122(14):2216-23. doi: 10.1002/cncr.30047.).

You can read the full, open access article here.

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PanCareSurFup European Conference

Our sister project PanCareSurFup hosted a European Conference ‘Acting Now!’ 23 – 24 May 2016 in Brussels.

You can watch a video of the event from the European Society for Paediatric Oncology (SIOP-E).

6th PanCareLIFE General Assembly Meeting

Members of the PanCareLIFE consortium met in Mainz, Germany at the 6th PanCareLIFE General Assembly Meeting, held 06 – 07 April 2016.

We are at the half way point for data collection, with 6 months left in the Call for Data. The meeting focused on identifying and solving issues with data provision with one-to-one sessions between data providers and lead fertility, ototoxicity and quality of life researchers. There was also a session dedicated to addressing technical issues with data transfer. We also heard about progress in the development of fertility guidelines and our intervention study.

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Report from World Hearing Day

On 03 Mar 2016, PanCareLIFE researcher Prof. Antoinette am Zehnhoff-Dinnesen participated in the World Hearing Day seminar on Childhood hearing loss: act now; here is how! at the WHO headquarters in
Geneva, Switzerland. The event was organized by Professor Alarcos Cieza, Coordinator Blindness and Deafness Prevention, Disability and Rehabilitation (BDD), WHO, and Professor Shelly Chadha, Technical Officer, Prevention of Deafness and Hearing Loss, Blindness and Deafness Prevention, Disability and Rehabilitation, WHO.

It was a great honour for me to make the acquaintance of many highly dedicated personalities from all over the world supporting the interests of deaf and hearing impaired people. In this year the World Hearing Day was dedicated to hearing loss in childhood. In the brilliant brochure “CHILDHOOD HEARING LOSS ACT NOW, HERE’S HOW!” (www.who.int/pbd/deafness/world-hearing-day/en) the WHO highlights the importance of prevention: main causes of hearing loss in childhood include “conditions at the time of birth, infections, diseases of the ear, noise and medicines” and WHO “estimates that around 60% of childhood hearing loss could be avoided through prevention measures”!

Also, Professor Chadha mentioned ototoxicity in her lecture on topics which should be concerned in the future. In addition to the seminar, I had the opportunity to participate in an informal session to discuss possible topics for the prevention of deafness and hearing loss and I stressed the importance of ototoxicity, especially by chemotherapy with Platinum compounds but also in preterm children by aminoglycosides and diuretics, and after application of antimalarial medicaments and HIV/AIDS therapy.

I had the opportunity  to hand PanCareLIFE brochures to Alarcos Cieza and Shelly Chadha. Professor Cieza and Professor Chadha who are doing excellent work for deaf and hearing impaired people were interested in the aims of the PanCareLIFE project and appreciated the support by the EU to investigate risk factors in drug metabolism and clinical confounders as basis for preventive measures.

I would be very grateful for further contacts concerning the topic ototoxicity.

Prof. Antoinette am Zehnhoff-Dinnesen

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From left to right: Prof. Antoinette am Zehnhoff-Dinnesen, president of UEP and Secretary General of WVC Prof. Shelly Chadha, Technical Officer, Prevention of Deafness and Hearing Loss, Blindness and Deafness Prevention, Disability and Rehabilitation Prof. Katrin Neumann, WHO advisor of WVC Prof. Alarcos Cieza, Coordinator Blindness and Deafness Prevention, Disability and Rehabilitation (BDD), WHO

PanCareLIFE in Trendy zdraví

PanCareLIFE researcher Dr. Jarmila Kruseová (FNM) was interviewed by Trendy zdraví.

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Data Provider Meeting in Amsterdam

PanCareLIFE data providers met 19 – 20 Feb 2016 in Amsterdam to discuss the process of providing data to the project. The Call for Data was launched 30 Oct 2015, marking the official start of data collection. The Amsterdam meeting focussed on how data collection is progressing, statistical analysis planning and on solving any emerging challenges we have encountered, with dedicated time for one-to-one, problem-solving sessions.

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Group photo of attendees

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Statistical analysis planning led by Dr. Harald Binder, UMC-Mainz

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One-to-one sessions with data providers