PanCareLIFE Academic Publications



Weiss, A., Sommer, G., Schindera, C. et al.  ‘Hearing loss and quality of life in survivors of paediatric CNS tumours and other cancers’ Qual Life Res (2018)
Genetic variation in gonadal impairment in female survivors of childhood cancer: a PanCareLIFE study protocol
M. van den Berg, M van Dijk et al. ‘Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE)’ JMIR Res Protoc. 2018 14;7(9):e10824
D. Grabow and P. Kaatsch ‘Europäische PanCare-Studien zu Spätfolgen nach Krebs im Kindes- und Jugendalter’ Onkologe 2018 24:754-9
J. Byrne et al. ‘PanCareLIFE: The scientific basis for a European project to improve long-term care regarding fertility, ototoxicity and health-related quality of life after cancer occurring among children and adolescents’ Eur J Cancer 2018 103:227-37
E. Clemens et al. ‘The influence of genetic variation on late toxicities in childhood cancer survivors’ Critical Reviews in Oncology/Hematology 2018 126:154-67
A. Weiss et al. ‘Audiological monitoring in Swiss childhood cancer patients’ Pediatric Blood & Cancer 2017 65(3):e26877
Clemens et al. ‘Hearing loss after platinum treatment is irreversible in noncranial irradiated childhood cancer survivors’ Pediatric Hematology and Oncology 2017 34(2):120-9
Clemens E, et al. ‘Socio-demographic impact of platinum-induced ototoxicity in long-term survivors of childhood cancer’ Curr Pediatr Res. 2017 21:470-479
A. Weiss et al. ‘Validation of questionnaire-reported hearing with medical records: A report from the Swiss Childhood Cancer Survivor Study’ PLoS ONE 2017 12(3):e0174479
E. Clemens et al. ‘Determinants of ototoxicity in 451 platinum-treated Dutch survivors of childhood cancer: A DCOG late-effects study’ Eur J Cancer 2016 69:77-85
Van der Kooi ALF, et al. ‘Longitudinal follow-up in female Childhood Cancer Survivors: no signs of accelerated ovarian function loss’ Hum Reprod 2017 32:193-200
Anna Font-Gonzalez et al. ‘Fertility preservation in children, adolescents and young adults with cancer: Quality of clinical practice guidelines and variations in recommendations’ Cancer 2016: Cancer 2016 122(14):2216-23
J.F. Winther et al. ‘Childhood cancer survivor cohorts in Europe’ Acta Oncologica 2015: 54(5): 655 – 668
P. Kaatsch et al. ‘The PanCareLIFE consortium: methods and organization of a pan-European investigation into fertility, hearing loss and quality of life among long-term survivors of childhood and adolescent cancer’ Eur J Cancer Submitted


Non-Academic Publications


PanCareLIFE features in FNM Newsletter (March 2018)
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PanCareLIFE in Cancer World Magazine (Sept – Oct 2015)
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PanCareLIFE in the Boyne Research Institute Newsletter (Aug 2015)
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PanCareLIFE Featured in CHU Magazine (June/July 2014)
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PanCareLIFE features in GPOH LESS Newsletter (March 2014)
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PanCareLIFE featured in UMC-Mainz Magazine (March 2014)
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Related Publications


M. Jankovic et al. ‘Long-term survivors of childhood cancer: cure and care —the Erice Statement (2006) revised after 10 years (2016)’.
D. Grabow et al. ‘The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries, European Journal of Epidemiology (2018) 33:335–349
A. Weiss et al. ‘Audiological monitoring in Swiss childhood cancer patients’
A. Weiss et al. ‘Long-term auditory complications after childhood cancer: A report from the Swiss Childhood Cancer Survivor Study’ 64(2):364-373. doi: 10.1002/pbc.26212
Asdahl PH et al. ‘Gastrointestinal and liver disease in Adult Life After Childhood Cancer in Scandinavia: A population-based cohort study’ doi: 10.1002/ijc.30198
A.S. Holmqvist et al. ‘Childhood cancer survivors at heightened risk of several autoimmune diseases’ Ann Rheum Dis. 2015 Nov 10. pii: annrheumdis-2015-207659
L. Hjorth et al. ‘Survivorship after childhood cancer: PanCare: a European Network to promote optimal long-term care’ Eur J Cancer. 2015 Jul;51(10):1203-11. doi: 10.1016/j.ejca.2015.04.002
C. Pfitzer et al. ‘Dynamics of fertility impairment in childhood brain tumour survivors’ J Cancer Res Clin Oncol. 2014 Oct;140(10):1759-67. doi: 10.1007/s00432-014-1702-7
C. Pfitzer et al. ‘Dynamics of fertility impairment and recovery after allogeneic haematopoietic stem cell transplantation in childhood and adolescence: results from a longitudinal study’ J Cancer Res Clin Oncol. 2015 Jan;141(1):135-42. doi: 10.1007/s00432-014-1781-5
T. Langer et al. ‘Related Publication: Understanding platinum-induced ototoxicity’
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S. Reinmuth et al. ‘Impact of chemotherapy and radiotherapy in childhood on fertility in adulthood’ J Cancer Res Clin Oncol. 2013 Dec;139(12):2071-8. doi: 10.1007/s00432-013-1527-9
E. Koustenis et al. ‘Impact of cranial irradiation and brain tumor location on fertility: a survey’ Klin Padiatr. 2013 Nov;225(6):320-4. doi: 10.1055/s-0033-1353206
S. de Fine Licht et al. ‘Hospital contacts for endocrine disorders in Adult Life after Childhood Cancer in Scandinavia (ALiCCS): a population-based cohort study’  Lancet. 2014 Feb 17. pii: S0140-6736(13)62564-7. doi: 10.1016/S0140-6736(13)62564
H. Sudour-Bonnange et al. ‘Fertility preservation in children and teenagers with cancer’ Bulletin du Cancer, 2013 Jul-August Edition Bull Cancer. 2013 Jul-Aug;100(7-8):727-35. doi: 10.1684/bdc.2013.1790
R.Haput et al. ‘Long term survivors of childhood cancer: Cure and care’ European Journal of Cancer
G. Calaminus et al. ‘Position paper of the Society of Pediatric Oncology and Hematology (GPOH) on (long-term) surveillance, (long-term) follow-up and late effect evaluation in pediatric oncology patients [DE]’ Klin Padiatr 2007; 219(3): 173-178 DOI: 10.1055/s-2007-973844